When most people hear the words ‘palliative care’, they think the end is near. But for young people, palliative care is about more than dying- it’s about living life. The palliative care team is there to support their patient and the people important to them to make the absolute most out of the days you have together; whether that’s through helping with pain and symptom management, talking through worries or sadness and planning for the future, or helping you connect with services and groups that can bring you joy and help you make memories with the people you love.
You might have come here looking for services, for answers, for connection, or for advice. While we are just a hub for bringing together information, we hope you’ll find some helpful info and resources here that will connect you with the things that matter to you.
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As a young person your experience and perspective of your paediatric palliative care experience is the best evidence we have to drive improvement for other young people.
To register your interest in contributing to the Paediatric Palliative Care Project, please complete a brief expression of interest survey.
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