Clear and compassionate information helps people make sense of paediatric palliative care and the support available for the whole family. Caring Together was developed to provide this understanding and support.
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This fact sheet provides carers with tips on how to access reliable and up to date information on how to care for a child with a life limiting illness.
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This fact sheet provides carers with strategies on how to talk to and tell siblings about the life limiting illness of their brother or sister.
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This introductory video highlights the holistic nature of paediatric palliative care in providing an extra layer of support to enhance children's quality of life and to support their families.
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In this video members of a paediatric palliative care team talk about their role in supporting you which is to provide guidance; help you understand what is happening at each step of the way and help you plan.
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This video provides insight from direct parent quotes of their experiences of being referred to and meeting a paediatric palliative care team.
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In this video two mothers share their initial reaction upon hearing the words 'paediatric palliative care' in relation to their child's condition.
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There are four sections in this module – Bonding and creating memories with your baby during pregnancy, Continuing your pregnancy in uncertainty, medically interrupted pregnancy and breastfeeding.
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In this episode, we hear from three parents who reflect on how their family tackled a referral to palliative care, how they managed their fears and hesitations, and what they would like to share with other families about the experience.
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This series of 10 conversations is real and raw, you will hear it ‘straight’ and learn what works, what doesn’t, and how the care and communication offered can be better.
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This series of 10 conversations is real and raw, you will hear it ‘straight’ and learn what works, what doesn’t, and how the care and communication offered can be better.
Read MoreWe recognise and acknowledge those who are working through Sorry Business, Sad News, grief and bereavement and offer our condolences and support.
Aboriginal and Torres Strait Islander peoples are advised that this website may contain images, videos and voices of people who have passed on. Some of the content and topics covered might also cause distress. You are welcome here, and we want you to feel safe and take care.
If you find that you need support please reach out to 13YARN on 13 92 76, Grief Australia, Grief Line on 1300 845 745, or Lifeline on 13 11 14.
Palliative Care Australia is located in Canberra. We acknowledge the traditional custodians of the surrounding land and waters, the Ngunnawal and Ngambri Peoples and pay our respects to Elders past and present. We extend that same respect and acknowledge the continuing cultures and contribution of Aboriginal and Torres Strait Islander Peoples across Australia.
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