Support for End-of-Life Care

End-of-life care can be an incredibly emotional and difficult time, and families may have many questions, worries and decisions, while also trying to spend meaningful time together and care for one another. End-of-life care can be one of the most emotional and difficult times for families. Alongside managing changing care needs and making important decisions, families may also be facing many questions, worries and uncertainties, while trying to support one another and spend precious time together. This page brings together trusted resources, videos and podcasts to help families feel informed, supported and connected every step of the way.

This page brings together trusted resources, videos and podcasts to help families explore available supports and provide gentle guidance during a time that can feel uncertain and overwhelming.

Questions and feedback about these resources are welcome. Please visit the Contact Us tab and complete the Feedback Form.

  • shareshare

    Here for you: (Booklet 2) -Things you might like to discuss with the palliative care team about care at the end of life

    You may find this booklet helpful to write down your questions or topics you wish to discuss with the care team.

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    What to expect in the final days

    This fact sheet provides carers with information on what to expect as their child approaches their final days. The information sheet may cause distress. We recommend that you seek professional support or support networks as you read this information.

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    What to do if your child dies at home

    This factsheet explains what to do after your child dies if you have been caring for them at home. It is important to be prepared for what needs to happen and to have support of a loved one during this time.

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    A Guide to Planning a Funeral for your Child

    Planning a funeral or memorial for your child is one of the most difficult times in your life. With the help of families who have been through the funeral planning process, those working in funeral care and health professionals we have prepared this booklet to guide and support you as you farewell your child in a way that is special, comforting,…

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    Selecting a Funeral Director

    This fact sheet provides information for parents and carers when dealing with a funeral director.

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    Living with Grief after Cancer

    Nothing can prepare you for the death of someone you love. There could be a lot of pain, confusion and hurt going on for you right now. This book is meant to be like a friend who will travel next to you – they may stay by your side the whole time or they may take you in a direction that…

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    Siblings and Grief

    This factsheet explains how carers can support siblings after the death of their brother or sister.

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    Supporting someone who is grieving the loss of a child

    This fact sheet will provide carers with information to share with family and friends on how to support them whilst they care for a child with a life limiting illness.

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    Approaching end of life - "The Nitty Gritty"

    This episode will focus on how families prepare for and navigate the devastating loss of their child. Parents in this episode explore their different needs for information and guidance, and how to know what you don’t know

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  • shareshare

    End of Life Location Choices - For Parents

    This video explores some of the considerations around end-of-life care settings and highlights the importance of supporting families to make choices that reflect their child’s needs, comfort and family wishes.

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    The heartbreak of perinatal and infant loss

    We hear from families discussing their experience of perinatal loss and the tragedy of the death of their baby.

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    Walking alongside adolescents and young adults at the end of life

    We hear from parents reflecting on the experiences of their adolescents who endured the complexities of their terminal illness.

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    Guiding and Support Families - The Story of a Funeral Director

    This video explores the role of a Funeral Director, the way they support families to farewell, honour or celebrate a child’s life, and provides some important information to help you.

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    Unmasking Grief

    Unmasking Grief illuminates the story of four bereaved mothers who came together over a series of months as they carefully removed their mask and shared with each other the truth of their grief. 

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    Counselling

    In this module you hear from Tara, Melissa, Priyanka and Rachael on their experience with counselling during their pregnancy, whilst their baby was alive and throughout the grieving process. The families will share how counselling supported them through this difficult time and strategies on how to cope.

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  • shareshare

    Funerals, ritual & remembrance

    In this episode two families recall their experience of taking on the unimaginable task of planning their child’s funeral. They also discuss the ways they continue to remember and honour their child’s memory in death, and how rituals support their continued connection with their child.

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  • shareshare

    Life after loss - "Living in shadows and sunshine"

    In this episode, we hear from two bereaved parents who share their family’s experience of grief following the death of their child, and the ongoing connection and memories they carry with them.

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    Life after loss – One year on

    In this podcast we hear from parents who share their family’s grief experience following the death of their child only one year ago.

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    Life after loss - Ten years on

    In this episode a family shares their experience of grief and loss following the death of their child ten years ago. They explore the ways they have adjusted over time and how they continue to honour and remember their loved one.

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  • shareshare

    After the Loss of a Child

    This is a resource for parents of children receiving palliative care to help them through this difficult time.

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