In this story we hear from Bec, a Registered Nurse reflecting on the important and rewarding role of Nurse's caring for children and supporting families throughout the paediatric palliative care journey.
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In this story Preeti, mother of Ziya shares her memories of her daughter and reflects on the importance of making memories.
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In this story we hear from Dr Chapman about her experience with Paediatric Palliative Care. "I feel very privileged to have some limited experience in the field of paediatric palliative care but would not claim to be an expert by any means. My role as a GP within this highly specialised area is to be the consistent point of contact for…
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In this story Jodie, mother of Cosette generously shares her memories of the palliative care journey, the precious times, the treasured bracelet and Cosette's farewell.
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Paediatric Palliative Care Family Support volunteers provide emotional and practical support to patients and their families.
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As a music therapist, I am privileged to work with children and young people with life-limiting conditions and their families to explore music-facilitated experiences in meaningful ways where often we can't find the words.
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Her rare diagnosis meant that we lived each day in the moment, fully present but also living in between worlds. One foot aware and prepared in the potential of loss, and one in the world of life and the here and now.
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We knew everything there was to know, we were all ready – until we weren’t…Emma was born at 38 weeks, a fabulous 3kgs, 10 fingers, 10 toes – but not breathing. She was blue, limp and needed resuscitating. Due to the incredible skill and a whole lot of luck, the neonatal team were able to get her heart started and she…
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As I stood in the emergency department for the third time in a week holding my usually alert 16-month-old who had gastro, I pleaded with staff to consider that he might be really unwell.
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