Former nurse and Assistant Minister for Health and Aged Care, Ged Kearney, shares a powerful and personal story of how her connection with palliative care made a transformative difference during two major challenges in her life.
Read MoreA personal story written by Tanya Gotch in loving memory of her daughter Jean Bernice, capturing their journey with paediatric palliative care and the unbreakable bond between two souls, connected by unconditional love for eternity.
Read MoreWhen Grant Monks went into palliative care as a teenager, he wasn’t expected to live. Now in his early 30s, that period of his life was the cornerstone of an outlook on what it means to be alive.
Read MoreRudi Greef’s experience of palliative care – as a parent – brought some unexpected light into a highly challenging time. He shares how in-home palliative care helped his son and family, and why he’s so determined to help other families.
Read MoreCosette's story is a poignant reminder of the impact one life can have on others and as Jodi perfectly put “Because of Cosette, I will be forever changed”
Read MoreIn this story, we learn about a passionate collaboration of bereaved parents and healthcare professionals introducing an innovative eLearning program—the Paediatric End-of-Life Care Communication modules.
Read MoreThe newly launched ‘Working Out What’s Right For Your Child’ discussion starter cards and the ‘Yarning Companion’ facilitator guide have been designed to support healthcare professionals.
Read MoreFor the first time we have data on the delivery of specialist paediatric palliative care in Australia.
Read MoreIn this story we share some important information that may be helpful as you navigate Paediatric Palliative care. Carer Gateway provides support to carers during difficult times.
Read MoreIn this story we hear from Jess, mother of Henry who shares her experience with Paediatric Palliative Care and the support they provided along the journey including making the challenging decision of end of life location.
Read More“The Action Plan is a roadmap for a national approach that provides guidance and direction on key priorities to improve outcomes for infants, children and young people living with a life-limiting condition.
Read MoreIn this story we hear from Heidi, a Social Worker in Paediatric Palliative Care. She shares her reflection on this important role and the individuals and families that inspire her.
Read MoreIn this story we meet Tanya, an Aboriginal Health Worker working in Paediatric Palliative Care. Tanya shares with us what motivated her to take on this role and the important work she does.
Read MoreIn this story we hear from Alison who shares with us the difficult decision to move from direct clinical care working with children and families to a research pathway to make changes to care at a system level,
Read MoreIn this story we hear from Bec, a Registered Nurse reflecting on the important and rewarding role of Nurse's caring for children and supporting families throughout the paediatric palliative care journey.
Read MoreIn this story Preeti, mother of Ziya shares her memories of her daughter and reflects on the importance of making memories.
Read MoreIn this story we hear from Dr Chapman about her experience with Paediatric Palliative Care. "I feel very privileged to have some limited experience in the field of paediatric palliative care but would not claim to be an expert by any means. My role as a GP within this highly specialised area is to be the consistent point of contact for…
Read MoreIn this story Jodie, mother of Cosette generously shares her memories of the palliative care journey, the precious times, the treasured bracelet and Cosette's farewell.
Read MorePaediatric Palliative Care Family Support volunteers provide emotional and practical support to patients and their families.
Read MoreAs a music therapist, I am privileged to work with children and young people with life-limiting conditions and their families to explore music-facilitated experiences in meaningful ways where often we can't find the words.
Read MoreHer rare diagnosis meant that we lived each day in the moment, fully present but also living in between worlds. One foot aware and prepared in the potential of loss, and one in the world of life and the here and now.
Read MoreWe knew everything there was to know, we were all ready – until we weren’t…Emma was born at 38 weeks, a fabulous 3kgs, 10 fingers, 10 toes – but not breathing. She was blue, limp and needed resuscitating. Due to the incredible skill and a whole lot of luck, the neonatal team were able to get her heart started and she…
Read MoreAs I stood in the emergency department for the third time in a week holding my usually alert 16-month-old who had gastro, I pleaded with staff to consider that he might be really unwell.
Read MoreIn this story, the author shares his reaction to the moment he was told - as a teenager - that his sister Dainere only had a year left to live. We hear his first-hand experience of what it was like to help care for his dying sister at home, and the invaluable support Dainere and her family received from the palliative care…
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Aboriginal and Torres Strait Islander peoples are advised that this website may contain images, videos and voices of people who have passed on. Some of the content and topics covered might also cause distress. You are welcome here, and we want you to feel safe and take care.
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