Two days before Emily died, her hospital room was transformed into a birthday party. For Melissa, it captured everything paediatric palliative care had given her family over four years: the chance to make precious memories together.
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Hannah is 13. She goes to school, loves horses, rainbows, and being outdoors. She also lives with childhood dementia. Her family have spent years learning what it means to live alongside their ‘rainbow girl’.
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This story explores a mother’s journey from fearing paediatric palliative care to discovering the compassion, support and dignity it can bring to families caring for a seriously ill child. Through Simone Machado’s experience caring for her son Nicholas, it reveals how palliative care can ease isolation, restore a sense of control, and help families focus on living
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This story explores the emotional and practical challenges young people and their families face when transitioning from paediatric to adult palliative care.
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Sharing your experience can make a real difference for other families. By sharing your experience of palliative care, you can bring comfort, connection and hope to others navigating similar paths, and help them feel less alone and more understood.
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This story shares how language and culture shape families’ experiences of paediatric palliative care. Clinical Nurse Consultant Yody Espitia Buritica helped develop Caring Together, a new resource created with communities to support families to better understand palliative care and the support available to them.
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This story explores how a mother’s lived experience and a nurse’s insight shaped a powerful new tool helping families and clinicians connect earlier with paediatric palliative care, when timing matters most.
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This story is about a dedicated group who, over 18 months, collaborated to create vital paediatric palliative care clinical guidelines.
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This story shares how a bereaved mother, silent for 40 years, found healing and transformation after watching the Unmasking Grief series.
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Dr. Amiruddin shares her insights as a clinical psychologist working with adolescents, highlighting her patients' resilience, the need to support siblings and families, and the remarkable lessons she learns from all of them.
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In this story, a mother shares her journey of navigating paediatric palliative care for her daughter, revealing that it's not just about end-of-life care, but about advocacy, guidance, and ensuring the best possible quality of life.
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“Great things happen when passionate people come together – and you are invited to join a growing community of health professionals who are better supporting young people and families by improving end of life communication skills.”
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In this story we hear from Joey, a senior pharmacist working at the Adolescent and Young Adult Hospice (AYAH). She shares her role is more than safe medication management, its about making difficult situations more manageable and meaningful, and listening beyond words.
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This year’s achievements have set a strong foundation for the important work ahead in 2025, as we continue to improve care and support for children and families in paediatric palliative care.
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Former nurse and Assistant Minister for Health and Aged Care, Ged Kearney, shares a powerful and personal story of how her connection with palliative care made a transformative difference during two major challenges in her life.
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A personal story written by Tanya Gotch in loving memory of her daughter Jean Bernice, capturing their journey with paediatric palliative care and the unbreakable bond between two souls, connected by unconditional love for eternity.
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When Grant Monks went into palliative care as a teenager, he wasn’t expected to live. Now in his early 30s, that period of his life was the cornerstone of an outlook on what it means to be alive.
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Rudi Greef’s experience of palliative care – as a parent – brought some unexpected light into a highly challenging time. He shares how in-home palliative care helped his son and family, and why he’s so determined to help other families.
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Cosette's story is a poignant reminder of the impact one life can have on others and as Jodi perfectly put “Because of Cosette, I will be forever changed”
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In this story, we learn about a passionate collaboration of bereaved parents and healthcare professionals introducing an innovative eLearning program—the Paediatric End-of-Life Care Communication modules.
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The newly launched ‘Working Out What’s Right For Your Child’ discussion starter cards and the ‘Yarning Companion’ facilitator guide have been designed to support healthcare professionals.
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For the first time we have data on the delivery of specialist paediatric palliative care in Australia.
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In this story we share some important information that may be helpful as you navigate Paediatric Palliative care. Carer Gateway provides support to carers during difficult times.
Read MoreWe recognise and acknowledge those who are working through Sorry Business, Sad News, grief and bereavement and offer our condolences and support.
Aboriginal and Torres Strait Islander peoples are advised that this website may contain images, videos and voices of people who have passed on. Some of the content and topics covered might also cause distress. You are welcome here, and we want you to feel safe and take care.
If you find that you need support please reach out to 13YARN on 13 92 76, Grief Australia, Grief Line on 1300 845 745, or Lifeline on 13 11 14.
Palliative Care Australia is located in Canberra. We acknowledge the traditional custodians of the surrounding land and waters, the Ngunnawal and Ngambri Peoples and pay our respects to Elders past and present. We extend that same respect and acknowledge the continuing cultures and contribution of Aboriginal and Torres Strait Islander Peoples across Australia.
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