Health Professionals

This page brings together quality information to support health professionals caring for infants, children and young people with life-limiting conditions and their families. The collection of resources is designed to strengthen clinical practice and help health professionals provide a paediatric palliative care approach wherever they work.

Questions and feedback about these resources are welcome. Please visit the Contact Us tab and complete the Feedback Form.

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    The Palliative Care Education Directory (PaCE)

    The Palliative Care Education Directory (PaCE) is a searchable directory of palliative care education.

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    A Practical Guide to Palliative Care in Paediatrics - 4th Edition (The Green Book)

    This is a practical guide to to support and empower clinicians to care for infants, children and young people with life limiting conditions and their families.

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    The Paediatric Palliative Care National Action Plan

    The Paediatric Palliative Care National Action Plan (the Plan) is a roadmap for a national approach to prioritise and work towards common goals and objectives for paediatric palliative care. This is to ensure that children with life limiting conditions and their families are supported and receive the information and care they need.

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    Paediatric Palliative Care Need in Australia

    This report looks at Paediatric Palliative Care Need in Australia using Queensland data from 2018 and 2019 and extrapolating it to the Australian population.

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    Paediatric Addendum

    The Addendum seeks to support the future design and development of paediatric palliative care services around Australia and by extension, support the health professionals who provide the services that meet the needs of children needing specialist palliative care and their families.

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    Paediatric Palliative Care National Data Project Report

    The report outlines the necessary data points (a ‘data dictionary’) and the mechanisms for collecting them to support the National Palliative Care Strategy. Establishes nationally consistent data collection and public reporting.

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    Paediatric Palliative Care Communication Course

    Explore our specialised course for healthcare professionals working in paediatric end-of-life care. Gain essential skills to communicate effectively with children, young people and families.

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    An Overview to Family Meetings and Difficult Conversations

    This fact sheet provides health professionals with an overview on how to hold family meetings and have difficult conversations with carers of a child with a life limit illness.

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    'Working out what's right for your child' -Discussion Starter Cards and Yarning Companion resources

    The Yarning Companion helps health professionals begin conversations with Aboriginal and Torres Strait Islander families about end of life preferences for a child or young person. The Discussion Starter Cards act as an ice-breaker to gently guide these conversations.

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    Cultural Considerations- IPEPA

    This document provides information for healthcare services about what should be known and understood, that will enable healthcare providers to deliver the best cultural care during the end-of-life journey for Aboriginal peoples and Torres Strait Islander peoples.

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    Referral to Paediatric Palliative Care - A Decision Making Guideline Tool for Health Care Professionals

    A reflective Decision Making Guideline Tool supporting timely paediatric palliative care referrals - helping health professionals and families navigate complex decisions and access care when it timing matters.

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    Paediatric Palliative Care Clinical Guidelines

    These clinical guideline are written for health care professionals who provide care to children with life-limiting diagnoses. It is intended to inform clinical practice through concise best practice advice. Please contact your Paediatric Palliative Care Service for further advice. 

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    Symptom Management Plan for Health Professionals

    This form allows health professionals to support carers to document a plan to manage any symptoms the child with a life limiting illness may experience

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    Advance Care Planning

    This fact sheet provides health professionals with an overview of how to discuss advanced care planning with carers.

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    Transferring a Child Requiring Palliative Care at Home for Health Professionals

    This prompt sheet outlines a process for health professionals to transfer a child receiving palliative care to their home.

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    Teachers supporting students at school

    This fact sheet provides teachers with strategies on what to do or say if a student in their class or a sibling of a student dies

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    Education for Teachers

    Ronald McDonald House Charities (RMHC) Australia EDMed professional development course for teachers. The course content is designed to empower teachers with the skills and information necessary to meet the educational needs of seriously ill children.

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    Self-care for volunteers

    This fact sheet provides Family Support Volunteers with some suggestions to maintain optimal level of wellbeing to support themselves while they do this vitally important work.

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    Essential elements for safe and high-quality paediatric end-of-life care

    The purpose of this National consensus statement: essential elements for safe and high-quality paediatric end-of-life care (the Consensus Statement) is to describe the elements that are essential for delivering safe and high-quality end of-life care to children in acute care settings in Australia.

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    Australia Charter of Healthcare Rights

    The Charter describes the rights that consumers, or someone they care for, can expect when receiving health care.

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    Thematic Summary: National Action Plan

    The Paediatric Palliative Care National Action Plan Thematic Report was developed to summarise the insights, feedback and experiences shared by stakeholders involved in the development of the Paediatric Palliative Care National Action Plan.

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    Background Literature Review: National Action Plan

    The literature review has been used as the basis to develop a discussion paper to guide consultations in the development of the Paediatric Palliative Care National Action Plan.

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    Know the right time - PCA Connect Webinar

    This webinar will unpack how the tool will help clinicians recognise when referral may be most beneficial, and how it can be used to guide reflective thinking and collaborative care planning.

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    Facilitating memory making

    This video explores memory making and a simple guide to facilitating memory making when the need arises. Memories can be precious moments from the past that can sustain us into the future. 

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