The words paediatric palliative care are words that no person thinks they will ever hear and when we think of palliative care, we typically associate it with older adults, but the reality is that infants, children, and young people are also affected by life-limiting illness.
But what families and carers need to know is that paediatric palliative care is more than you think. It is about improving the quality-of-life of infants, children and young people with a life limiting condition and those that care for them.
Paediatric palliative care supports each infant, child, young person and those that care for them in all aspects of care including physical, emotional, social, financial, cultural, and religious needs. Health professionals believe that the role of the family/carer in this care is essential as you known your child the best. Each family is unique, and everyone’s paediatric palliative care journey will be different.
These pages will provide you with information and resources that can be helpful at different times in your paediatric palliative care journey.
This resource seeks to support parents and carers in their…
When your child is diagnosed you may have many questions…
This form allows carers to document all the relevant care…
This fact sheet provides carers with strategies on how to…
We recognise and acknowledge those who are working through Sorry Business, Sad News, grief and bereavement and offer our condolences and support.
Aboriginal and Torres Strait Islander peoples are advised that this website may contain images, videos and voices of people who have passed on. Some of the content and topics covered might also cause distress. You are welcome here, and we want you to feel safe and take care.
If you find that you need support please reach out to 13YARN on 13 92 76, Grief Australia, Grief Line on 1300 845 745, or Lifeline on 13 11 14.
Palliative Care Australia is located in Canberra. We acknowledge the traditional custodians of the surrounding land and waters, the Ngunnawal and Ngambri Peoples and pay our respects to Elders past and present. We extend that same respect and acknowledge the continuing cultures and contribution of Aboriginal and Torres Strait Islander Peoples across Australia.
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