Finding Reliable Information

Receiving health information about a child with a life-limiting condition can be overwhelming and confusing. Families may have many questions about their child’s illness, treatment options and the support available to them.

This factsheet encourages families to speak openly with their child’s primary medical care team and reminds them that no question is too small or unimportant. It includes practical suggestions that may help families prepare for appointments and discussions, such as writing down questions, asking for information to be explained clearly, and requesting written summaries after important conversations or decisions.

The resource also explores how families can safely access additional health information outside of the primary medical care team. While online information and social media can provide support and connection, not all information is reliable or accurate. The brochure encourages families to carefully consider where information comes from and to discuss any questions or treatments they have heard about with their palliative care team or their primary medical care team.

Click here to download the factsheet

The factsheet is also available in Arabic, Vietnamese, Traditional Chinese and Simplified Chinese.

Tìm kiếm thông tin đáng tin cậy Finding Reliable Information Fact Sheet - Vietnamese 找到可靠 的資訊 Finding reliable information Fact Sheet - Traditional Chinese 找到可靠信息 Finding reliable information Fact Sheet - Simplified Chinese