Decision Making

“Different families may make different decisions when faced with identical circumstances”.

When a child has a life-limiting illness, families may face many difficult decisions about care and treatment. These decisions can feel overwhelming, particularly during an emotional and uncertain time.

Parents and carers play an important role in decision-making and often work together with the primary medical team and/or the palliative care team to consider the available options. Clear and open communication can help families understand what choices are possible and what each option may mean for their child.

This resource explores how decisions about care are made and who may be involved in the process. It encourages families to ask questions, seek clear information and take the time they need to consider what feels right for their child and family. It also recognises that some decisions are complex and ongoing conversations and support are essential throughout the child’s care.

It is important to remember that, depending on the child’s age, conditions and level of understanding, the child’s voice and views, hopes and concerns should be included in these conversations wherever possible.

Click here to download the factsheet and learn more about decision-making in paediatric palliative care.

The factsheet is now available in Arabic, Vietnamese, Traditional Chinese and Simplified Chinese.

إتخاذ القرار - Decision making Fact Sheet - Arabic

Đưa ra quyết định Decision Making Fact Sheet - Vietnamese

做出 決定 Decision making Fact Sheet - Traditional Chinese

做出 决定 Decision making Fact Sheet - Simplified Chinese