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What to expect in the final days
Many parents want to know what to expect as their child approaches the final days of life. For some families, this information can feel confronting to read or talk about, and they may feel too scared to ask questions.
This guide provides information to help families understand some of the changes that may occur as a child becomes closer to death. Every child and every situation is unique, but knowing what may happen can help reduce some of the fear and uncertainty families often experience during this time.
The resource explains some of the physical and behavioural changes that may occur in the last days and hours of life. It also offers practical suggestions for families caring for their child, such as ways to stay connected, create a calm and comforting environment, and seek support from their primary medical team if they have concerns.
Parents are encouraged to ask questions and reach out to the palliative care team or their primary medical care team if they are unsure about what they are seeing or feeling.
Click here to download the factsheet.
The resource is also available in Arabic, Vietnamese, Traditional Chinese and Simplified Chinese.
ما الذي تتوقعه في الأيام الأخيرة - What to expect in the final days Fact Sheet - Arabic Dự kiến điều gì vào những ngày cuối cùng What to expect in the final days Fact Sheet - Vietnamese 最後的日子裡 會發生些 什麼 What to expect in the final days Fact Sheet - Traditional Chinese 最后的日子里 会发生些 什么 What to expect in the final days Fact Sheet - Simplified ChineseFor more information: Visit Palliative care for children with Cancer – A guide for parents:
We recognise and acknowledge those who are working through Sorry Business, Sad News, grief and bereavement and offer our condolences and support.
Aboriginal and Torres Strait Islander peoples are advised that this website may contain images, videos and voices of people who have passed on. Some of the content and topics covered might also cause distress. You are welcome here, and we want you to feel safe and take care.
If you find that you need support please reach out to 13YARN on 13 92 76, Grief Australia, Grief Line on 1300 845 745, or Lifeline on 13 11 14.
Palliative Care Australia is located in Canberra. We acknowledge the traditional custodians of the surrounding land and waters, the Ngunnawal and Ngambri Peoples and pay our respects to Elders past and present. We extend that same respect and acknowledge the continuing cultures and contribution of Aboriginal and Torres Strait Islander Peoples across Australia.
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