End of Life Location

Navigating end-of-life care for a child is unfathomably difficult and is an emotionally challenging journey often marked by difficult decisions about where that final chapter will unfold. Whether it’s choosing between home care, a hospice facility, or a hospital setting, the decision regarding the location for end-of-life care is deeply personal and profoundly impactful.

The End-of-Life Location videos, written stories and resources are a comprehensive guide designed to assist parents, families, caregivers, and healthcare professionals in making informed and compassionate decisions about end-of-life locations. This guide aims to provide support, information, and insights into the various considerations involved in choosing the most suitable environment that aligns with the preferences and needs of the family supporting their child nearing the end of life.

Within the two videos, one from the parent perspective and one from the healthcare professional perspective, you will find practical advice, personal stories, and guidance on how to navigate the complexities of this incredibly profound space. Recognising that every person’s journey is unique, these resources seek to empower you with the knowledge and tools necessary to make thoughtful and informed decisions, fostering an environment of dignity, comfort, and peace for those facing the end of the life of their child.

We acknowledge with love and respect, each family who has shared their story for this project. In loving memory of Silas, Henry, Tristan, Tiarna, M, S, M and Rio.

We extend our heartfelt gratitude to Rachel for graciously providing the stunning images featured throughout this resource.

End of Life Location Choices_Parents Fact Sheet Supporting End of Life Choices_Health Professionals Fact Sheet Paediatric Palliative Care - End of Life Choices-Parent Stories

  • End of Life Location Choices - For Parents

  • Supporting End of Life Location Choices- For Health Professionals