Paediatric Palliative Care

Paediatric palliative care is more than you think. It is about improving the quality of life of infants, children and young people diagnosed with a life-limiting condition and supporting those who care for them.

The philosophy of paediatric palliative care is to provide holistic care whereby families and multi-disciplinary health care professionals work collaboratively including alongside treatment aimed at cure.

Palliative care for infants, children and young people involves a diverse range of conditions, symptoms, and experiences. Paediatric palliative care acknowledges these differences and provides individualised, holistic care that is focused on the physical, emotional, social, financial, cultural, and spiritual needs of the child and family.

This website has been co designed with health care professionals, support organisations, and families to provide quality information, and resources about paediatric palliative care, as well as a National Service Directory in one easily accessible location.

It is essential to have information about paediatric palliative care that caters to the needs of specific groups. To address these differing needs, we have developed dedicated sections for:

  • health professionals,
  • children, families/carers and
  • young people.

This website will continue to evolve over time to provide new and updated information and resources.

  • Unmasking Grief - Our story of holding sorrow and joy 

    Unmasking Grief is a series of 6 videos where four bereaved mothers share with each other the truth of their grief,…

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  • Paediatric Palliative Care Team - We will support you

    In this video members of a paediatric palliative care team talk about their role in supporting you.

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  • Oceanic Palliative Care Conference 2023 - Register

    It’s your cheapest ticket to 3 days of invigorating conversations, dynamic learning, and valuable networking.

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  • Demystifying Paediatric Palliative Care

    The video shows two mothers initial reaction upon hearing the words ‘paediatric palliative care’

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  • Paediatric Palliative Care - Pathway To Success

    Parliamentary Friends of Palliative Care event, ‘Paediatric Palliative Care: A pathway for success

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Each infant, child, young person and family is unique, and everyone’s paediatric palliative care experience will be different.

The role of families and caregivers is central to the care provided.

Read more

The provision of high quality paediatric palliative care for every infant, child, young person and their families involves collaboration between the child, family, caregivers, and multidisciplinary health care professionals.

Read more

Being on the cusp of adulthood is a unique time of life, a time to figure out who you are and what’s important to you. And if you’re also navigating a serious, life-threatening or life-limiting condition, you probably have things on your mind that are very different to a lot of your friends.

Read more

Each infant, child, young person and family is unique, and everyone’s paediatric palliative care experience will be different.

The role of families and caregivers is central to the care provided.

Read more

The provision of high quality paediatric palliative care for every infant, child, young person and their families involves collaboration between the child, family, caregivers, and multidisciplinary health care professionals.

Read more

Being on the cusp of adulthood is a unique time of life, a time to figure out who you are and what’s important to you. And if you’re also navigating a serious, life-threatening or life-limiting condition, you probably have things on your mind that are very different to a lot of your friends.

Read more

The Paediatric Palliative Care National Action Plan Project received grant funding from the Australian Government as part of the Supporting Children with Life Threatening Medical Conditions and their Families 2019 election commitment.