Paediatric Palliative Care

Paediatric palliative care is more than many people think. It focuses on improving the quality of life of infants, children and young people living with a life-limiting condition, while also supporting their families and carers.

Paediatric palliative care can be provided alongside treatments aimed at cure and supports the physical, emotional, social, cultural, spiritual and practical needs of children and families. Every child, young person and family experience paediatric palliative care differently, and care should reflect their individual needs, values and goals.


Take a look at this short video to learn how the Paediatric Palliative Care website may support families, carers and health professionals with practical and compassionate resources.

This website has been co-designed with families, carers, health professionals and support organisations to provide trusted information and resources about paediatric palliative care in one easily accessible place.

Resources across the website are organised into sections for families and carers, and for health professionals.

Families can also explore information depending on the type of support they may need at different times, including understanding paediatric palliative care, ongoing support, and support for end-of-life care.

The Stories section shares real experiences from families and health professionals to help others feel informed, supported and connected

  • The support Simone almost turned away

    This story explores a mother’s journey from fearing paediatric palliative care to discovering

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  • Caring Together: Making paediatric palliative care easier to understand

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  • A guide for the journey: supporting young people through palliative care transition

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  • Whatever you need, we’ll make it happen

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Each infant, child, young person and family is unique, and everyone’s paediatric palliative care experience will be different.

The role of families and caregivers is central to the care provided.

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The provision of high quality paediatric palliative care for every infant, child, young person and their families involves collaboration between the child, family, caregivers, and multidisciplinary health care professionals.

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Being on the cusp of adulthood is a unique time of life, a time to figure out who you are and what’s important to you. And if you’re also navigating a serious, life-threatening or life-limiting condition, you probably have things on your mind that are very different to a lot of your friends.

Read more

Each infant, child, young person and family is unique, and everyone’s paediatric palliative care experience will be different.

The role of families and caregivers is central to the care provided.

Read more

The provision of high quality paediatric palliative care for every infant, child, young person and their families involves collaboration between the child, family, caregivers, and multidisciplinary health care professionals.

Read more

Being on the cusp of adulthood is a unique time of life, a time to figure out who you are and what’s important to you. And if you’re also navigating a serious, life-threatening or life-limiting condition, you probably have things on your mind that are very different to a lot of your friends.

Read more

The Paediatric Palliative Care National Action Plan Project received grant funding from the Australian Government as part of the Supporting Children with Life Threatening Medical Conditions and their Families 2019 election commitment.