Unmasking Grief illuminates the story of four bereaved mothers who came together over a series of months as they carefully removed their mask and shared with each other the truth of their grief.
In these stories you will meet:
- Angela: Rosa was born 11yrs ago in 2012. Unexpectedly, the day after her birth she was diagnosed with Trisomy 18 and her parents were told she’d die, likely that day. Rosa died at home 7 weeks later.
- Bec: Bec’s son Marc was born in 2012 and was diagnosed at 5 and a half months old with a rare brain malformation called Lissencephaly – “smooth brain”. His journey was a roller coaster, with many highs and lows, where he taught us all many lessons, including how love truly knows no bounds. Marc passed away peacefully at home in his sleep in October 2018, aged 6 years, and 9 months.
- Rachel: Rachel’s daughter Evie was born in 2008 and was diagnosed almost immediately afterwards with Partial Trisomy 9 and Partial Monosomy 6. Evie died suddenly yet peacefully in her sleep in October 2010, aged 2 and a half years.
- Yvonne: Fourteen years ago in 2009, Yvonne’s youngest daughter Dainere was diagnosed at aged eleven with a cancerous brain tumour called Medulloblastoma. Despite undergoing surgery and aggressive treatments, the disease spread, and she died at home four years later in 2013 aged just fifteen.
We share our story through six chapters. Our story unfolds in response to prompt questions carefully crafted through a series of co-design workshops. Each prompt question is time stamped (eg. 09:30) allowing you to move to or avoid different question responses. See chapters listed below.
Prelude: You may like to begin this journey by viewing this short six-minute overview of the Unmasking Grief story. This prelude shares themes that arise within the six chapter story.
Viewing these stories and confronting suffering may not be easy. When feeling vulnerable, some people find it helpful to lean into the comfort of trusted family and friends, a family doctor or counsellor. If you are seeking urgent support we encourage you to contact Lifeline on 13 11 14.
We came together in loving memory of Evie, Dainere, Marc and Rosa who will always envelope us in a blanket of love.
We honour Rachel, Yvonne, Bec and Angela as they unmask their grief and share the gift of their story to enable others to walk tenderly with their grief.
We recognise the diversity of experiences in grief within gender, culture, faith and spirituality. These videos may not be representative of your experience yet honour the universal experience of loss and grief.
These videos been funded as part of the Paediatric Palliative Care National Action Plan Project. This Project received grant funding from the Australian Government.