Ongoing Care and Support

Ongoing support can help families feel informed, connected and supported as care needs and circumstances change over time. This page brings together trusted resources, videos and podcasts to help families navigate care, wellbeing, relationships and support services along the way.

Questions and feedback about these resources are welcome. Please visit the Contact Us tab and complete the Feedback Form.

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    shareshare

    Hearing from fathers - "Just call me dad"

    This episode focuses on the experiences of two fathers caring for and parenting their children with life limiting illnesses.

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    Marmaduke’s Story – Childhood Cancer

    We hear the first hand account of family members reflecting on the importance of children’s palliative care, including home-based care and effective pain control for childhood cancer patient Marmaduke.

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    Family and friends support – when it helps and when it hurts

    Having an infant with a life limiting or terminal diagnosis is an unfathomably difficult time where you need family and friends to rally around and support you. In this module you hear from the families about how they create a support system, how they deal with family and friends who say hurtful things and tips for keeping family and friends updated.

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    Were there health professionals who stood out, and why? Ep. 4

    In this episode we hear from families who draw upon their real-life experiences to answer the question "Were there health professionals who stood out, and why?"

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    The worst thing a health professional said to you? Ep.2

    In this episode we hear from families who draw upon their real-life experiences to answer the question "The worst thing a health professional said to you?And What impact did it have?"

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    Did you ever make a complaint? Ep.3

    In this episode we hear from families who draw upon their real-life experiences to answer the question "Did you ever make a complaint?"

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    If you were Health Minister for a day, what would you do? Ep.9

    In this episode we hear from families who draw upon their real-life experiences to answer the question"If you were Health Minister for a day, what would you do?"

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We recognise and acknowledge those who are working through Sorry Business, Sad News, grief and bereavement and offer our condolences and support.

Aboriginal and Torres Strait Islander peoples are advised that this website may contain images, videos and voices of people who have passed on. Some of the content and topics covered might also cause distress. You are welcome here, and we want you to feel safe and take care.

If you find that you need support please reach out to 13YARN on 13 92 76, Grief Australia, Grief Line on 1300 845 745, or Lifeline on 13 11 14.

Palliative Care Australia is located in Canberra. We acknowledge the traditional custodians of the surrounding land and waters, the Ngunnawal and Ngambri Peoples and pay our respects to Elders past and present. We extend that same respect and acknowledge the continuing cultures and contribution of Aboriginal and Torres Strait Islander Peoples across Australia.

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