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The Paediatric Palliative Care National Action Plan

The Paediatric Palliative Care National Action Plan

The Paediatric Palliative Care National Action Plan (the Plan) is a roadmap for a national approach to prioritise and work towards common goals and objectives for paediatric palliative care. This is to ensure that children with life limiting conditions and their families are supported and receive the information and care they need.

The Plan was prepared by PCA with funding support from the Australian Government Department of Health and Aged Care.

In acknowledging the sheer diversity of issues and concerns that are often part of the journey for children and young people with a life-limiting condition and their families, the Plan aims to promote direct and positive outcomes. 

Implementation of the recommended actions of this Plan is a decision for each jurisdiction. Effective implementation will require active partnerships across governments, service providers, researchers, peak organisations, and diverse consumer groups.

The rigorous research base and broad consultation process has ensured that this Plan forms a valuable addition to the existing body of knowledge about paediatric palliative care in Australia.

The voices of consumers being so uniquely weaved through the Paediatric Palliative Care National Action Plan is what makes this plan so different. 

Key Priorities

The Plan provides guidance and direction on key priorities and actions to improve outcomes for children, young people and their families living with a life-limiting condition, as informed by consumers and other key stakeholders.

We hope the Plan will establish a uniform, consistent and transparent approach to paediatric palliative care, so that all families in Australia who have a child with a life-limiting condition will be able to access palliative care services, in the most appropriate, informative, supportive and compassionate way.

We believe that the Plan will be life changing for many families. It is hoped that changes can be made in order to break down the barriers and fear attached to the term ‘palliative care’ and to understand that paediatric palliative care isn’t just about dying, it’s about living.