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Welcome to the video series covering the Paediatric Palliative Care Conference 2022. We’ve gathered a diverse array of voices – from lived experience advisors to healthcare heroes – all dedicated to enhancing the lives of children facing life-limiting conditions.
Whether you’re a professional, a caregiver, or simply curious, our videos promise to enlighten, inspire, and deepen your understanding of paediatric palliative care.
Dive into the latest studies, research, and heartfelt discussions that define this field.
Co-design approaches to establishing a bereavement peer-support program at a Children’s Hospice
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Memory making in neonatal and paediatric bereavement care: developing a survey-study to understand parental experiences
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Going Home - Supporting rural families after the death of a child/adolescent
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Youth Advisory Groups – Supporting young people to lead
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Returning to Country: building capacity for equitable, accessible Paediatric Palliative Care
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The psychosocial impact of childhood dementia on children and their families: A systematic review
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Serious health-related suffering experienced by children with disability in Bangladesh
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Taking care of both sides of the ‘system’ fence
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Adolescents and young adult panel session
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‘Funeral Tips for Kids’ – A resource evolved from therapeutic sibling bereavement care
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Manly Adolescent and Young Adult Hospice
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Pain characteristics in childhood dementia: Data from Dementia Support Australia
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Epidermolysis Bullosa in Paediatric Palliative Care: A Case Series
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Post-mortem tumour donation: a palliative intervention?
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Paediatric Palliative Care Involvement in the Care of Children Awaiting a Heart
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F-PPC: Developing an online education package for Regional Allied Health Professionals
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Paediatric Palliative care across Australia
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Perinatal Hospice: An ideal approach to enhance perinatal palliative care
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The Co-design of a National Action Plan on Paediatric Palliative Care
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What do airports and geese have to do with self-care?
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Use of Clinical Death Reviews to Foster Sustainable Practice in Paediatric Palliative Care.
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"Til the wheels fall off": Multicultural care for young people facing the end of their life.
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Edison’s Journey – An Account of the Continuum of Perinatal Palliative Care
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Canavan Disease: The Journey of Two Siblings
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We recognise and acknowledge those who are working through Sorry Business, Sad News, grief and bereavement and offer our condolences and support.
Aboriginal and Torres Strait Islander peoples are advised that this website may contain images, videos and voices of people who have passed on. Some of the content and topics covered might also cause distress. You are welcome here, and we want you to feel safe and take care.
If you find that you need support please reach out to 13YARN on 13 92 76, Grief Australia, Grief Line on 1300 845 745, or Lifeline on 13 11 14.
Palliative Care Australia is located in Canberra. We acknowledge the traditional custodians of the surrounding land and waters, the Ngunnawal and Ngambri Peoples and pay our respects to Elders past and present. We extend that same respect and acknowledge the continuing cultures and contribution of Aboriginal and Torres Strait Islander Peoples across Australia.
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