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A Family Companion

A Family Companion’ is designed for parents and carers of infants, children and young people with a life-limiting condition.

This resource aims to prepare you for the situations and challenges you may face with regards to your child’s illness.

The information seeks to support parents and carers in their role as champions and decision-makers for their child, with each section exploring stages of your child’s illness and what you might expect.

Topics explored throughout the resource include understanding paediatric palliative care, treatment choices and goals of care, planning and decision-making, symptom management, caring for a child at home, family wellbeing and support, end-of-life care, grief and bereavement, and available support services.

The resource is also helpful for extended family members, close friends and your support network to read and understand the difficult issues that may arise after the diagnosis or recognition that your child has a life-limiting illness.


Click here to download the resource: A Family Companion

 

A Family Companion is now available in Arabic, Vietnamese, Simplified Chinese and Traditional Chinese. 

رفيق العائلة - A Family Companion - Arabic Sổ tay Gia đình - A Family Companion - Vietnamese 家庭 陪護 A Family Companion - Traditional Chinese 家庭 陪护 A Family Companion - Simplified Chinese