Lived experience advocate
Tara is a wife to Anthony and mother to three daughters. Two earth side and bereaved of Emma in 2011. An early childhood teacher with experience working and volunteering in early childhood, neonatal, child life, peer bereavement and paediatric palliative care. After the neonatal/palliative care death of my first born daughter Emma, I have used my lived experience to help advocate for other bereaved families within our health system and the wider community. I currently serve on several Stakeholder Advisory Groups and have partnered with The Centenary Hospital for Women and Children Neonatology Department, the Australian National University bereaved mothers and breastfeeding, University of Canberra Midwifery guest lecturer and as a consumer consultant for Palliative Care ACT and the Paediatric Palliative Care National Action Plan. I was very privileged to participate in sharing the research project “ Developing an educational resource for neonatal staff caring for a dying baby and their family: an experienced based co-design” as the parent lead on the project at the 2019 Oceanic Palliative Care Conference. In 2023 I presented at the conference again. This time sharing my narrative piece “ I’m a neonatal palliative mother – how you can use consumers like me”.